Friday, August 7, 2009

Strength, denial and me

We ALL feel it, special needs children or not: the stress from work or loss of work, the lack of enough cash flow to cover the bills, the medical problems, the demands of family life, the economy, the gas pump and on and on . . . And each of us has our own way of dealing with stress. Some people will exercise religiously (which I will start doing tomorrow, I promise!), some people find comfort in friends and some, unfortunately, find relief in ways that are damaging to their bodies and their families.


I realized yesterday, that for me, I was living in the land of denial. I was just plain out denying that I was stressed. Spouse unemployed? no problem. No cash flow? oh, that's okay. Medical issues? I'll just keep pretending I am not in pain rather than have the surgery, because who has time for surgery when I am trying to earn as much cash as possible? Marriage falling apart? I am strong, I can handle this. I put my head down and charged like a mad bull into life. Throw a load of laundry in, get to work, run to appointments, figure out ways to help the kids with their medications/sensory problems/summer fun/friends/therapy/behaviors/obsessions, get everyone cleaned up and into bed, complete any work and off to bed myself, exhausted.


Then my sister called with the "we're worried because we haven't heard back from you" call. Which was true! My friends and family who I used to have time to talk to had been neglected in my rush. I just couldn't fit one more thing in my day. And as I talked to her on the phone I choked back the tears that suddenly flowed, I didn't want her to worry more about me. But as she gently asked me questions, I realized that here was someone who was genuinely worried about ME, that I was important and actually loved. 


And with sudden clarity I saw my life as I had carefully constructed it: a shabby cardboard box surrounded me, inside I scurried through each day, without stopping to think or feel - because I was afraid if I did stop, even for a moment, to really feel my emotions, I would break into a million shards and that strong woman who could care for her special needs children would die. 


As I listened to my sister's kind voice, I felt the shabby box start to break apart. Quickly I tried to put it back together, but a shaft of light had shone in the land of denial, and the box couldn't be repaired. Emotions started to leak out, and some landed on this page. 




1 comment:

Auntie A said...

Life is asking so much of you right now, I don't know how you do what you do everyday - head down like a bull is effective sometimes! Your post is so moving and expressive, honest and so moving.
I'm proud of you for being a wonderful and strong mother to and advocate for two of my favorite people in the whole world. But mostly I am proud of you because you are YOU! The one and only JOAN whom I have loved my whole life. You don't have to be strong or brave with me, just being whatever you are at the moment is being perfect. So when the box comes down, or if you maybe just need to lift the lid a little, I'll be here. And remember that you are more than a vehicle to be driven for the sake of others, even for the sake of others you love so dearly. YOU are important! You are deserving! You are Joan, the Great, afterall!
Love you, Annie